Thursday, 2:25 - 3:00pm
Research Data Alliance: building an international data sharing community
Mark A. Parsons, Rensselaer Polytechnic Institute
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Project: National Database for Autism Research (NDAR) Informatics Platform
Abstract
The autism community defined the goal to share 90% of all human subjects research data. Through a Subject Identifier, harmonized data definition, data federation with other public and private funders, and progressive data sharing policies/techniques, research data on 77,500 subjects related to autism are now shared. Analyzed results, specifically associated with the outcome measures, and research subjects defined by cohorts is supported. In our lightning talk I will present the NDAR model for data sharing focusing on the scientific and computational results (see data from papers), which is likely relevant to the creation of a National Data Service.
Friday, 11:30am - 12:00pm
Making Science Data Infrastructure a First Class Citizen
Erin Robinson, Foundation for Earth Science
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